March 14, 2015
It's okay to drop the ball!
Today while looking in Taz's closet for dress clothes to wear to his friend's birthday party, I realized just how much time I've lost while dealing with cancer, working a full time job and raising two special needs kids. I couldn't find a single sweater that would fit him and he grows very slowly. Majorly dropped the ball on that one.
I always manage to buy school uniforms but apparently I have skipped the necessary dress clothes for the past couple of years. Worse, we've gone through the whole winter, which was a really cold one, and I haven't been shopping once. At least not at stores that sell preteen boys clothes.
Of course I practically live at Sam's Club and frequently go to BJ'S, but neither of these stores sell clothes in his size. Here's a shout out to both of these stores to start carrying a line of clothes for kids in between, i.e., not babies and toddlers, and not adult sizes.
Of course the real point is that I have no energy to shop at any store other than ones like Sam's Club were I have to go anyway to get bulk foods, prescriptions and household items.
The days of hitting the Outlet Malls are long gone and I only go to the mall if I absolutely have to.
Here's a perfect example. I recently needed some makeup that I could only get at a department store. So I go to Macy's and the requisite counter and the person there who was "filling in" could not find what I needed. She asked me to come back that afternoon when the regular person would be in. I guess she's used to people who go to the mall for hours on Saturday.
I wanted to say "Hello, I'm only here for one thing, I haven't stepped inside the Mall for ages, I'm recovering from cancer, I have a sick #SNK child at home and I am Not coming back later!" That would have taken more energy than I had, so I bought a couple of other items and left without the one I came for.
It's hard enough being a mother to special needs children, but when you face your own illness and multiple surgeries too, it's beyond overwhelming.
Today was a perfect example of how I roll these days. I pulled out a pair of jeans, a school Polo and a school jacket and gave them to Taz. Then I made a mental note to buy him some nice sweaters between now and next winter. It's on the list along with so many other tasks that probably won't get done.
I'm trying to plan a special 13th birthday party for Taz in the next couple of weeks. The race is on and I can't even keep up with the tortoise. Anyone got a hare I can borrow?
My kudos and praise go out to any mom who can do more than the bare minimum while dealing with her own illness and raising special needs kids. Some days even the bare minimum is just too much.
On the bright side, I did manage to photograph the winter ball for Taz's school this week. It's something I do every year and really enjoy, and TG Taz's only suit still fits. I was exhausted afterwards but really enjoyed it. It's nice to know that a few of my favorite things are part of my new norm. And I learned a longtime ago that the world isn't going to fall apart just because I drop the ball.
Nianya
November 16, 2014
Nianya's Law & The Holidays . . .
I have blogged about this in the past My own version of Murphy's Law.
Nianya's Law: If anything can go wrong, it will, at the worst possible moment!
My solution?
1. Always be flexible and have a back up plan.
This often means upsetting the plans of relatives or friends. If your special needs kids have sensory issues or food allergies, holidays can be trying at best. Make it clear that any plans are subject to change. Maybe that just means arriving late and leaving early and bringing your own food.
2. Know when to hold them and when to fold them.
Don't over book and be prepared to cancel or change plans at the last minute. Sometimes you or your special needs child simple are not up to going out. Holiday plans are not school. They aren't mandatory not matter what anyone else says.
3. Ask your special needs child to help you when you need it.
Never underestimate your child's ability to help you at least when they reach an age at which they can do so. If you prepare them in advance and ask for their help, you may just find that they can help you solve any contingencies.
You can always negotiate with them. Keep a list of items, food or outings they want and offer a trade. Help me now and you can have x later.
4. Stock up on fun surprises for those unexpected times when you are homebound.
There are always times during the year when you will be stuck at home, whether it's due to illness, snow or other bad weather. Break out the old videos, a new or old game, or simple crafts. If they miss their friends, there is always Skype.
This year, facing several weeks of recovery from my upcoming surgery, I'm having to constantly rethink our holiday plans. We had them all set way in advance, but luckily nothing was set in stone. Now I'm busy brainstorming new ideas for things we can do here with just the four of us.
After more than 18 years as a special needs mom, I have learned to ride out the waves when life throws them at us, and I know that doing so only makes our family stronger.
Nianya
November 11, 2014
ANYTHING CAN HAPPEN . . .
It's anything can happen, day, week, month and apparently year. When talking about special needs kids, I always emphasize that it's vital to never underestimate their abilities.
The "Great Scot" (above) has had a phenomenal first semester in college. She's ASD and ADHD but she has worked harder than most people I know to get where she is and stay there.
Sometimes it isn't easy. Especially, when fate intervenes at your conference tournament, right after you win an award. (ASC Soccer). The link says it all, so I won't go in to detail, expect to say that she was one of the players who fell ill at the Conference tournament.
And then, there's the Tazmanian Sheldon (left). One minute, he's lecturing you on the characteristics of wormholes (What is a Wormhole?). The next minute he's freaking out because he can't find a red, white and blue shirt to wear to school for his Veteran's Day program. Yes, he did find one after a 15-minute frantic search. It's underneath his jacket, which he wears everywhere. It's okay though, because he knew he was wearing the right shirt, even if no one else did!
Never underestimate the genius inside a kid with ASD and ADHD, especially when you give him a computer and access to the internet. Just make sure you have a really good Net Nanny!
And then there's me. It's hard enough to raise special needs kids on any given day, but my hat is absolutely off to parents who are going through cancer while trying to keep tabs on their amazingly special kids. It's overwhelming, even for a parent who has been dealing with overwhelming for years while standing on her head.
Our lives now are defined by a bright line - BC & AD (Before Cancer & After Diagnosis). We are all on a new path and our family will only grow stronger because of this.
Nianya
October 12, 2014
August 27, 2013
Never Underestimate Their Abilities
For all the parents out there who are just getting a special needs diagnosis or who are completely overwhelmed, I have one line of advice that will get you through the tough times.
NEVER UNDERESTIMATE YOUR CHILD'S ABILITIES
That applies to us as special needs parents and everyone we come in contact with. Be it schools, relatives, or the public in general.
I have a high school senior who could not speak at age six and barely spoke when she was 10. Now she's speaking to college soccer coaches AND impressing them enough on the field to get potential offers for college.
I also have a 6th grader who nearly failed the 5th grade. This year he's going around bragging about how he tested out of 6th grade math. If you ask him what grade he's in, he'll say I'm in 6th this year, BUT I'M in 7th GRADE MATH!
Nuf Said!
Nianya
April 2, 2013
World Autism Day
September 5, 2012
Special Needs Advice from a Seasoned Traveler in Negotiating Educational Storms
No matter how old your special needs child is, eventually he or she will attend school and issues with teachers/administrators will arise.
Depending on the school your child attends, you may face issues throughout the year or just transitional issues with each new class/teacher. If your child is in public school you'll likely go through the IEP process.
Having a written plan is great, but you still have to make sure it's implemented.
If your child is in private school, you'll need to work with the administration and teachers to set up an educational plan.
Georgians also have the option of using the SB10 special needs scholarship to help fund private school tuition; however, once you elect the scholarship you give up your rights to the written IEP.
That said, you can still find a school that will work with your child within the guidelines written in your IEP.
Regardless of your situation, as a parent, you are your child's best advocate. That means:
- Always Be Prepared: Keep written notes and documents at close hand.
- Be Proactive: Set up private meetings with teachers at the beginning of each year.
- Communicate Constantly: with teachers, preferably via email so you have all the info in writing.
- Know Your Child's Best Needs: What works best for your child before you go into meetings, such flexibility in schedules, modification of work, asking for a particular teacher, extra tutoring etc...
- Have an Alternate Plan: If your current educational plan isn't working then figure out what changes your child needs to succeed.
- Never Panic: Work through the crisis in your head and on paper before you go into meetings.
July 4, 2012
Chuck E Cheese goes Electric. . .but until they change their policy on food allergies I won't bite. . .
Chuck E. Cheese Ditches Retro Rodent for Rockstar - ABC News
Regular blog followers may remember Taz's 5th birthday when we went to the local Chuck E. Cheese for his party and were informed that he could not eat his special #GFCF food there. . .the manager made him eat his dinner in the car during his own birthday party.
We even contacted corporate afterwards to complain because they have no problem with folks bringing in Cakes and Cupcakes. We were informed that the restaurants do not allow any outside food except Cakes and Cupcakes. Until they change this policy we won't be back no matter how well "Chuck Rocks."
June 26, 2012
Why Are American Kids So Spoiled?
Just make it part of their routine. My special needs kids have chores. Do yours?
June 25, 2012
Starting ADHD Medication at younger age May Improve Test Scores
Both my kids started before 4th Grade and Taz actually started in pre-K. He was one of the rare recommendations for starting at such an early age because of behavior and complete inability to stay still for even a few minutes.
Just remember that your kids need to be evaluated regularly for correct dosage as they grow and advance in school and it's a good idea to discuss newer options each year with your doctor, since medications change and no one size fits all.
Starting ADHD Medication By Fourth Grade May Improve Test Scores, Study Finds - ABC News
Photo: "You say jump, I say how high" ©nianya-photography
June 17, 2012
Happy Father's Day Mystic and all Special Needs Dads
In our house Father's Day means the first day this year that we will have full respite. . .Taz is at the beach for the summer with Camp Auntie and cousin and Jessie's off to soccer camp for 4 days. We've come a long way since the days of not even being able to sit in a restaurant with our children.
I was very pleased to see a great article on Dads struggling with autism in our local paper today.
Dads struggle with child's autism, embrace parenting | ajc.com
April 4, 2012
The Tazmanian Chronicles

Are you wondering what these pictures have in common?
December 22, 2011
How the Special Needs Mommy Rolls. . .
December 15, 2011
Amateur treasure hunter finds Viking king's silver. . .
Fascinating story. Nothing like buried treasure with old history attached.
Darren Webster, a metal detector enthusiast, stopped by a field near Canforth, northern England, to practice his hobby and uncovered a hoard of silver Viking treasure buried three feet (0.9 meters) below the earth, The (London) Times reported Thursday.
The 201 silver objects -- including 27 coins, 10 arm-rings, six brooch fragments, two finger rings, a fine wire braid and 14 ingots -- were put on display at the British Museum.
Read more at www.foxnews.comWhen the exact value of the silver hoard is calculated next year, Webster will be allowed to keep half of its value under the UK's Treasure Act, with the owner of the field, who wished to remain anonymous, taking the other half.
The Autism Question
December 14, 2011
iCaughtSanta.com Add Santa to your home photos
Very nice idea, though if my kids were still young enough, I could just photoshop Santa into my own pic for free. Good price for those who don't have photoshop.
$11 for 4 Custom Images and a Video of Santa in your Home! ($25 value, save 55%)
About iCaughtSanta.com
visit the site: http://www.icaughtsanta.com/socialspark/
Imagine the look of wonder and surprise when a child receives a photo of Santa caught in the act in his or her very own home. iCaughtSanta.com is a unique website that helps visitors create those memorable keepsake photos.
Read more at app.socialspark.comIn three simple steps anyone can upload a holiday photo, add Santa Claus and print it as proof… or share it via email, Facebook and Twitter. Last-minute shoppers can send this to friends and loved ones with children, making iCaughtSanta.com a great gift idea even if you don't have kids yourself.
November 29, 2011
Codecademy - Learn to program for free
Love this idea!
Codecademy says it can turn anyone into a Web programmer
NEW YORK (CNNMoney) -- It's a tough economy out there, but there's at least one skill in high demand: programming.
Industry veterans insist that almost anyone can master the basics of software coding. Now, a pair of entrepreneurs have teamed up to test that idea with a company called Codecademy, which aims to make learning to program simple and fun.
"Coding is going to be the literacy of the 21st Century, and we think we have the easiest way to do it," says co-founder Zach Sims.
"It's totally different from books that are one-way learning experiences," he says. "We think it should be more interactive, more fun than something in a book, where you read for half an hour and then you go code."
Read more at money.cnn.comRight now, everything on Codecademy is free. Users receive badges and points for completing lessons. The site currently has four multi-part courses available -- a "coding 101" class and three JavaScript trainers -- but it hopes to ramp up quickly. Launched in June, the New York-based site has already attracted $2.5 million in a funding round led by Union Square Ventures and is a graduate of Y Combinator, one of Silicon Valley's most closely watched incubators.
November 28, 2011
Items in '12 Days of Christmas' now top $100K
Think maybe it's time to get back to the true meaning of Christmas?
Items in '12 Days of Christmas' now top $100K
PITTSBURGH — The price of partridges, pear trees and turtle doves has spiked, pushing the cost of every item mentioned in the carol "The Twelve Days of Christmas" above $100,000 for the first time.
Holding mostly steady this year: maids-a-milking, ladies dancing, lords-a-leaping and gold rings.
The 364 items repeated across all the song's verses would cost $101,119, an increase of 4.4 percent over last year, according to the annual Christmas Price Index compiled by PNC Wealth Management. The broader government Consumer Price Index increased by 3.9 percent over the same period.
"The story in general is wages are still a very sluggish part of this economy," said Dunigan, who noted that the price of eight maids-a-milking at minimum wage was $58 — the same as in 2009.
Read more at www.accessatlanta.comBut last-minute shoppers who turn to the Internet may be in for some surprises. The core list that costs about $24,000 in stores will come to $39,860 online — a whopping 16.1 percent increase over Internet prices last year. Dunigan said the high cost of shipping live birds explains some of the difference.
November 27, 2011
Frosty arrested - End of the World as we know it!
'Frosty the Snowman' arrested at Maryland parade
CHESTERTOWN, Md. — Who says "Frosty the Snowman" has to be jolly?
A man in a "Frosty the Snowman" costume was arrested Saturday during the annual Christmas parade in Chestertown, on Maryland's Eastern Shore. He's accused of scuffling with police and kicking at a police dog.
Read more at www.accessatlanta.comWalsh told The Associated Press that he has dressed as Frosty in the parade for at least 10 years. He says he was wrongfully arrested. He says an officer hassled him after he remarked about the police dog's presence. He says he became agitated only after getting arrested.
November 26, 2011
Jobs by Horoscope. . .
Better than waiting in long lines to apply I suppose. . .
Scorpios and Virgos Need Not Apply
Experience and skills are secondary when it comes to hiring by one Chinese firm. What matters most is your celestial sign.
“We don’t want Scorpios or Virgos, and Capricorns, Pisces and Libras will be prioritized,” reads ad posted at a university in the city of Wuhuan, the U.K.’s Telegraph reported.
Read more at abcnews.go.comAccording to the Telegraph, the company, which does English-language training, believes that Scorpios are moody and have overpowering personalities, while Virgos are overly critical and constantly changing jobs.
November 25, 2011
How to save you credit score on Black Friday. . .
Two Words: DON'T SHOP!
It's not rocket science. It's just good sense.
7 Ways to Save Your Credit Score on Black Friday
Overspending on gifts around the holidays isn’t something uncommon. In fact, with high lines of credit available to consumers, credit card companies are doing everything they can to ensure that we overspend.
In a society that oftentimes requires individuals to borrow, one’s credit score is increasingly an important number. Companies use algorithms to calculate how much credit an individual can obtain. With recent dips in the economy and foreclosures on the rise, many people are wondering if there are a few easy ways to improve their credit scores? Here are my seven top tips:
1. Pay bills on time
2. Don’t go crazy over the holidays
3. Keep yourself under 50% of available credit
4. Credit card deals aren’t really "deals"
5. Get help if you are having trouble
6. Get on a budget
7. Get a copy of your credit reportRead more at www.foxnews.com
November 20, 2011
Camping Out for Black Friday
Case in point: Some of us have to work the two weeks before the Big Event and no doubt will easily earn more money than we could save on anything by camping out in front of a store for two weeks before Black Friday. Just saying.
Black Friday Hours Create Employee Revolt
Case in point: Tito Hernandez, who has been camping in a tent outside of a St. Petersburg, Fla., Best Buy store since last Monday. You read that right, last Monday, nearly two weeks before the big day.
"Definitely having fun here," Hernandez said with a smile. "Looking to save some money and get some good deals."
Read more at abcnews.go.com
And are those bargains really worth all the crowds and chaos? Turns out, you may actually be better off waiting. According to Consumer Reports, last year more than a quarter of the most popular electronics were marked down in the two weeks after Black Friday.
November 18, 2011
Surviving Thanksgiving #ASD, #ADHD
This is why we leave town for a just the 4 of us get away each Thanksgiving; no relatives, a hotel with maid service and breakfast and no meals to cook or clean. Also fun stuff out to do besides the wasted Black Friday shopping. I'm a bigger fan of Cyber Monday.
With special needs kids, it's the only way to go!
Surviving the Relatives This Thanksgiving
Honestly, I don’t know how we all do it over the holidays — with a smile no less — even when the guests are oh-so-annoying, the visiting toddler grinds cracker crumbs into the carpet, the tween refuses to eat anything she’s served and the uncle falls asleep on the couch, snoring loudly.
There will be squabbling cousins, know-it-all brothers-in-law, aunts who can’t resist criticizing your cooking and bored teens who make it clear they would rather be anywhere else. Let’s not forget the vegetarians, vegans and picky eaters who make every meal a challenge. Never mind what we think gatherings should be like. The reality is young kids are discombobulated by travel, unfamiliar surroundings and too much sugar; grown-ups are discombobulated by travel, overeating and over-drinking.
HIDE THE GLASS ANIMALS,
STOCK UP ON APPLE JUICE,
CREATE A KIDS’ HANGOUT AREA,
GET EVERYONE OUT OF THE HOUSE
SET THE GROUND RULES.
LEAVE THE EMOTIONAL BAGGAGERead more at www.foxnews.com
November 17, 2011
Economy Down Heels Up. . .
I wonder if the reason isn't more that higher heels make women feel taller and feel like they have more of a "leg up" in down times. . .they come across as stronger in a weak economy.
High Heels for a Down Economy?
A look back at decades of shoe fashion research reveals that high heels soared during the worst recessions. “Usually in an economic downturn, heels go up and stay up as consumers turn to more flamboyant fashions as a means of fantasy and escape,” says Dr. Trevor Davis, a consumer products expert with IBM Global Services.
Read more at abcnews.go.comThe average heel height today is six inches, more than double what it was the 1970s.
November 10, 2011
No more Gmail app for Blackberry
Shame on Google. . .normally I support them whole-heartedly, since I used Gmail, Picasa, Blogger, Google+, Google Calendar, you name it.
Luckily I have a Droid not, but my husband still uses a Blackberry as do many we know and he uses Gmail exclusively.
Very Bad Move Google!
Gmail to Stop Providing Email App for BlackBerry
Read more at abcnews.go.comGoogle has offered a free app that BlackBerry users can download to read their Gmail on the go, but it has now announced that as of Nov. 22, it will stop. No more downloads, no more technical support if you already have the app. The app will still work if you have it (go to http://m.google.com/mail on your handheld if you still want to get it), but Google says it would prefer you just use the browser on your handheld instead. (Just go to http://www.gmail.com. It’s slow but it works.)
Call it Black Thursday. . .
Good news for those who overindulge at the Thanksgiving table this year. . .just put your sweats and track shoes on and head over to WalMart for a marathon sprint beginning, not Friday, by Thursday night. Just make sure you burn more calories than bucks.
Wal-Mart unveils Black Friday circular: See the deals
NEW YORK (CNNMoney) -- They may as well call it Black Thursday. Joining a slew of other national retailers, Wal-Mart said it too will open its doors nationwide on Thanksgiving night.
Starting at 10 p.m., Wal-Mart is offering doorbuster deals on toys, clothes and home accessories like $5 Barbies marked down from $19, jeans for less than $10, children's pajamas sets for $4.47 and a Black & Decker Coffeemaker for $9.44.
Read more at money.cnn.comThen at midnight, the retailer said it will begin discounting electronics as well. Deals include a Samsung 51-inch plasma TV for $498 down from $649, a Kodak 14 megapixel camera for $49 and a Magellan GPS for $69, marked down from $89.
November 9, 2011
Christmas Tree "Tax". . .
This borders on the issue of separation of church and state. . .but no worries in my house, since we already stick to hypo-allergenic, non-flammable artificial trees that we can reuse year after year and don't have to water.
Starting today, the government is imposing a 15-cent fee on most fresh-cut Christmas trees, but before critics compare President Obama to the Grinch, officials want to explain this is a growers’ arrangement to boost tree sales. And they insist it is not a “tax.”
As the holidays approach, imported fresh trees will be assessed as they cross the border, and American growers will ante up in February for each fresh-cut Christmas tree sold. Small growers and all-organic tree farms will be exempt.
Read more at abcnews.go.comThe money all goes to a marketing board being set up for the tree growers’ industry, just like the “Got Milk” dairy marketing campaign and the beef industry’s “What’s for Dinner” commercials, both examples of what officials call highly successful advertising efforts which boosted sales and consumption.
October 31, 2011
Macy's to open at midnight Thanksgiving Day
Personally, I will be snuggled up asleep at midnight and saving my money for Cyber Monday shopping in my bunny slippers . . .get real folks there will be better sales later. You can get a coffee maker today at Sam's Club for less than 40% off Macy's midnight Black Friday price.
Macy's to open at midnight Thanksgiving Day
NEW YORK — Macy's Inc. says it will open all of its namesake stores at midnight following Thanksgiving for the first time, becoming the latest retailer to extend hours on the traditional kickoff to the holiday season.
Target Corp. announced Friday that it was also opening its doors at midnight for the first time ever and will be offering Black Friday specials starting at that time. It also plans to stay open 23 hours. Last year, the discounter had opened its stores at 4 a.m.
"People want to shop through the night," said Martine Reardon, Macy's executive vice president of marketing. She noted the expanded hours were in response to customers' requests.
Read more at www.ajc.comReardon also offered a sneak peak at some of the deals shoppers can find starting at midnight following their turkey dinner: 40 percent off select coffee makers, tea kettles and espresso makers, and a $65 Justin Bieber limited-edition fragrance gift set, which includes a 3.4 ounce eau de parfum spray and the singer's new holiday CD. Macy's is also discounting Rampage boots to $19.99, down from $49 to $59.
October 28, 2011
Don't Let Food Allergies Make Your Halloween Scary
As a mother of a child with milk and wheat allergies, I'm glad to see a story about how to get through Halloween. We face the same dilemma on other holidays such as Thanksgiving, Christmas, Valentines and Easter, especially with the schools where parents bring in home baked treats and goodie bags. It isn't easy!
Don't Let Food Allergies Make Your Halloween Scary
Here are some tips and strategies that may help to reduce the risks during Halloween if you have children and adolescents with food allergies or asthma:
• Discard foods, candies, sweets that have been prepared in neighbor’s or friends homes.
• If food or candy is not wrapped with labels, take a pass. And when in doubt, throw it out!
• Before the Halloween holiday, consider pre-giving “safe” snacks to your friends and neighbors ahead of time for your child. This will help you and your child feel more comfortable and at ease.
• Instead of giving out only food and candies, consider having alternatives: themes, games, pumpkin carving and costumes.
• Did you know that smaller sized candy for Halloween may contain different ingredients than their regular sized counter parts?
• Teach your child to politely say no to home baked cakes and cookies, especially when the ingredients cannot be 100 percent confirmed.
• Have an early pre-Halloween dinner for your child with a food allergy. This may help to reduce temptation to try unknown or un-labeled foods.
• Keep safe snacks on hand and with you.
Read more at www.foxnews.com• Bring emergency medications such as asthma inhalers if prescribed, during trick or treating events. Remember, asthma can be a risk for more severe reactions to food allergens. Have an asthma action plan in place for optimal control now, and throughout the year.








